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Neuroendocrine tumour (NET)

The information on this page is about support and treatments for people with neuroendocrine tumours, often shortened to NETs.These are rare tumours that form when the specialised cells that produce hormones behave abnormally.

UHL has a Macmillan Neuroendocrine Nurse Specialist, who will be involved in your care and can give you further information.

If you having surgery for your NET you will also be able to contact your tumour-site specific clinical nurse specialist (CNS) for advice and support about your surgery. For example if you are having lung surgery, you will have a CNS from the lung department.

Click on the heading below for a leaflet about the team looking after you:

 Other leaflets that might be useful to you are:

We have also written a booklet about having Peptide Receptor Radionuclide Therapy.

In –depth information about neuroendocrine tumours is also available from the national charity:

Neuroendocrine Cancer UK www.netpatientfoundation.org

Helpline 0800 434 6476

More information

Click on the coloured text links below for general information which may be of help:

Tests and investigations

Click on the above link to see if there is any online UHL information on the tests and investigations you may require. Use the search box to find out.

Surgery

You will be advised by the nurse specialist within your surgical team on appropriate information for any surgical procedures you may be considered for.

Chemotherapy and other drug therapies

UHL and other information about chemotherapy, hormone therapy, biological therapy (including immunotherapy) and other drug therapies.  Please note that not all therapies are suitable for all types of cancer.

Radiotherapy

UHL and other information about radiotherapy treatment.  Please note that radiotherapy is not suitable for all types of cancer.

Eating, appetite or taste

Local and other information that you may find useful if you have eating problems as a result of your cancer or its treatment.    

Support groups

For details of support groups, please click on the link above. We run a local support group in Leicester linked to  Neuroendocrine Cancer UK.

This page last reviewed 14/06/2021