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Soft tissue sarcoma information

Sarcoma Service

This page is about soft tissue sarcomas. If you are looking for information on sarcoma of the bone, please view the bone cancer information page.     

Soft tissue sarcomas are rare cancers. University Hospitals of Leicester NHS Trust (UHL) is part of the East Midlands Sarcoma Service (EMSS). The care of patients diagnosed with soft tissue sarcomas is managed by this network-wide multidisciplinary team. EMSS is one of fifteen accredited soft tissue sarcoma treatment units in England and Wales. Surgery most frequently occurs at Nottingham University Hospitals NHS Trust as part of the EMSS. All treatment is individualised and will be delivered close to home, where circumstances allow.

The East Midlands Sarcoma Service, in collaboration with UHL, has produced booklets relating to adult soft tissue sarcoma:

The Sarcoma Team looking after you

Imaging and diagnostic tests

UHL has a Sarcoma Nurse Specialist, who will be involved in your care and will be able to give you further information. 

More information

Click on the coloured text links below for general information which may be of help: 

Tests and investigations

Click on the above link to see if there is any online UHL information on the tests and investigations you may require. Use the search box to find out.

Chemotherapy and other drug therapies

UHL and other information about chemotherapy, hormone therapy, biological therapy (including immunotherapy) and other drug therapies.  Please note that not all therapies are suitable for all types of cancer.         

Radiotherapy

UHL and other information about radiotherapy treatment.  The leaflet "Radiotherapy for soft tissue sarcomas" is located on the "Radiotherapy to Specific Areas" page. Please note that radiotherapy is not suitable for all types of soft tissue sarcoma.     

Eating, appetite or taste

Local and other information that you may find useful if you have eating problems as a result of your cancer or its treatment.        

Support groups

For details of support groups, please click on the following links:

The East Midlands Sarcoma Support Group (EMSSG)

Details of other sarcoma support groups across the UK

General cancer support groups in the local area.             

Further information

If you would like more information, including details of how to contact the Sarcoma Nurse Specialist, please contact the Cancer Information Centre or click on the heading above for details of other organisations that may be able to help you.         

Information in languages other than English 

To find out if there is any information about cancer, cancer treatments and living with cancer available in your preferred language, please click on the heading above, or contact the Cancer Information Centre.  

Gastro-intestinal stromal tumour (GIST)

GISTs are malignant tumours of soft tissues in the gastro-intestinal tract (the stomach and intestines). They are a very rare kind of sarcoma. If you have been diagnosed with a gastro-intestinal stromal tumour (GIST), you may find the information on the GIST Cancer UK website useful.

This page last reviewed 14/06/2021